Thankful Thursday and Thoughts–September 8, 2011

I am thankful:

1.   Mom and I had an enjoyable lunch at Hudson’s Barbecue while we were out to run errands yesterday.
2.   Penny is doing well on the medicine the veterinarian changed.
3.   I have read some excellent books recently.
4.   I archived some of the free eBooks on my Kindle, and with the memory freed the device is working much better.
5.   Alex and I chatted a few nights ago and he seemed to be doing well.
6.   The temperature was a bit cooler, so Hope and I walked a mile last evening.
7.   I have been cooking more, and Mom seems to really enjoy it. I still hate to cook, but it is nice to make her happy.
8.   The recent storms have passed us by without any damage.
9.   Jeremy fixed the air conditioner on my Buick.
10.  I cleaned out all the freezers, so there is only good food inside.

I have been trying to stay home as much as possible because going into town has been making me very nervous since my niece, Leigh, and her family had their van stolen. I know they were in a different city, and that Washington, D.C. is a high crime area, but I cannot seem to shake the feeling that something bad might happen while I am out. I am more comfortable at home on the average day.

I managed to buy some books and bookmarks at Borders’ going out of business sale. I would have liked it more if I had had more money to spend, but some is better than none. I am so disappointed that my favorite bookstore is ceasing to exist. I suppose Amazon will get my business from now on because there is no nearby physical bookstore. Thankfully a new library is opening near here soon. I read many more library books than books I own. Reading is an expensive habit without library books. The free eBooks on Kindle give me lots of reading material too. One thing I really must begin to do is leave a book if it doesn’t interest me and stop plodding through books just because I started them.

I am planning on going to my thirty year class reunion this month, but am a little hesitant about it. School was not such a pleasant thing for me because I was bullied, though I do have some good memories on the academic side. I have always enjoyed learning. I hope this reunion is better than the ten year one I attended.

Laura, my daughter-in-law, found a puppy. She seems totally taken with Luna who is a black Lab mix. I think with all the attention she is giving the puppy that it should turn out to be a fine dog. I have no doubt Luna will be just as spoiled as my Hope.

I have not been paying much attention to my creative side. I fail to write, I fail to draw, and I fail to paint. Somehow I need to get back to those things, but my enjoyment of reading seems to hold me captive. There should be a balance, where I create and I read, but that does not seem to happen. At least I am not hooked on television. Computers, yes, books, yes, but those things give me some hope that I can be reunited with my creative side. I should really come here and blog more often, but I have little incentive. I often feel I am only talking to myself, and I can do that in my head without all the effort of typing out the thoughts and making them sensible. I manage to post on Twitter and Facebook quite often via TweetDeck, but even that seems futile at times. One day I am going to make a collection of my best Twitter posts and bring them here. I think some of them are quite erudite.

I hope all of you are doing well and living happily. I am happy in my life be it ever so simple.

Always,
Jo Ann

Update and Thankful List – Tuesday, August 2, 2011

Much has happened since I last updated here. My son Alex spent a little more than a month here at home with us. It was good to have him home, but it was also hectic. On Saturday, July 2, 2011 Alex married Laura-Ann Coale. The wedding ceremony was beautiful and I am so happy to have gained a wonderful daughter-in-law. I hope and pray that God will richly bless their marriage. I was kept busy with helping to arrange the event and keeping the household running. Alex left for Japan, where he will be stationed for three years, on July 8th. We have not had much communication since then. I am hoping we will begin to communicate more as he settles into life there.

I am thankful:

1.   Alex and Laura had a beautiful wedding.
2.   They were able to get away for a short honeymoon.
3.   Mom and I were able to be at the wedding, and help make things work out well.
4.   Laura has been working on our back porch and is going to stain it and the ramp.
5.   I re-learned how to use the DVD player and have watched a concert with Mom.
6.   I have been cooking more, even though I still hate cooking.
7.   I have had some awesome books to read.
8.   The lilies finally bloomed and I got some beautiful pictures.
9.   Alex gave me an iPod Touch 64GB.
10.  The dogs were groomed last Wednesday and look adorable.

Mom had a bad day Friday, and was very sick. She is doing better now.

I have been very concerned about the drama playing out in Washington and am quite convinced that our politicians have lost touch with the American people. I do not believe they have our best interests at heart. I may be very economically challenged, but I still vote, and the incumbents in the House and Senate will not have my vote in the upcoming election. This idiocy has caused much stress for me and I will remember. When the livelihoods of myself and a significant portion of my family are threatened because of governmental mismanagement, I notice. I am quite fed up with legislators who believe they are immune to any ill effects of the decisions they make. There needs to be some consideration for the people of this nation, and if not, the government needs changing.

I am very sad that Borders is going out of business since they have been the dominant bookstore in my life for most of my life. I suppose that Amazon will gain the majority of my business in the future since they have much better prices than any other bookstore I can name. I thank God for my local public library, because in reality, most of the books I read come from there.

Hope goes for her annual exam this month. I am hoping the veterinarian does not find her overweight. She is bigger than Mom’s two Shih Tzu.

My sleep schedule has changed a bit. I now stay up very late, like 2am and 3am. I sleep in very late as well. It gives me some quiet time to read and compute without the distraction of the television which Mom runs a great deal when she is awake.

Life goes on. I hope things are going well for all of you.

Always,
Jo Ann
 

I Am Fragile, Weak

My psychiatrist says I must now
See him every three months
So he can vigilantly observe me
Because I came nearly apart again.

The stress to which I am currently subjected
Is somewhat beyond my ordinary safety limit.
I worry about Mom obsessively and constantly,
I cannot distance myself from her plight.

I have full responsibility for care of Mom
And everything else, which is maintained here.
There is no one stepping in to render aid,
It is do-it-myself or leave it completely undone.

I am capable, and can perform most tasks
As long as no one looks too closely or asks,
“How are you doing?” I answer, “Very well.”
I will not let down my habitual trusted mask.

Underneath the well-worn façade I realize
There are cracks in my courage, my resolve,
I barely hold on to my placid existence:
I live in total abject horror of Mom’s passing.

My friends who pay close attention may
Have some awareness of my fragility,
But my family does not recognize
How very desperate I sometimes am.

I must toughen up and stand firm
For the situation will not get better
Mom’s deterioration is hastening along,
I promised to care for her, and I will.

© Jo Ann J. A. Jordan
Tuesday, May 24, 2011

I Am Afraid…

Mom’s health is deteriorating. She is having more problems all the time. I am doing my best to care for her, but I have no control over systems in her body that are malfunctioning. I monitor and report to her doctors. They do not have the answers either. We are fighting a war we cannot win against an opponent all who live must face, aging. Eventually living catches up with us and we begin to wear out. Death comes steadily closer in an inevitable march.

Tuesday, we both had mammograms. Mine was fine. They found something suspicious on the left side in Mom’s results. She has to have another mammogram next Tuesday. I know it may be as simple as a shadow, but I am worried. What will I do if there is something wrong? How will I face it?

Her blood pressure has been uncontrollable. Sometimes it is very high, sometimes it is very low. I monitor it, but I cannot regulate it.

The Parkinson’s disease is progressing; the weakness and trembling are getting worse. I cannot make it go away.

Her memory is failing. There are things she just does not hold in her mind anymore. I try to keep up with everything, but what of the things she knew that I never learned?

I try my best to care for her, but nothing I do is making things better. I hate watching her get worse, but I cannot stop the hands of time.

I still need my mother, without her things will be so much more difficult for me. I will have to go without the things she helps me have. I will have no one to listen to my uncontrolled rants. I will have no one to share my fears. I will have no one to cheer me when I have no will to carry on. No one cares for me so much or so unconditionally. Who will face my insanity with me and help me back to reality? Who will talk to me, anytime? Who will bring me a present, just because? I do not think I can face life without her. How do I prepare to lose her? Can I really face days alone?

I am afraid… I know I am strong, but I am also very weak. I am used to her support, she is always there holding me in her love. How will I survive?

God is with us always, but sometimes God seems impersonal and far away. Mom can hold me in her arms, God cannot, not physically. How do I live without hugs and smiles?

I pray she is here longer, because I love Mom so much, but I also pray she has to suffer very little. I cannot hold her to this life when she is very uncomfortable here.

What am I to do? I am terrified…

Always,
Jo Ann


When I Write… I Must Sacrifice

Unfortunately, I do not write as much as I should. I have some talent, and some say a way with words. There are things I concentrate on more than writing practice.

I am an avid reader. This year I have read forty-five books and they have not been thin volumes. I will read instead of taking time to write.

I have responsibilities that take up a large amount of my time: chores, shopping, caring for Mom and the dogs, and cooking. I also spend many moments computing: checking and answering email, chatting with my son, Alex, who is a U.S. Marine, updating and checking Facebook, and posting to Twitter and reading the posts of those I follow.

The truth is these pursuits do not prevent my writing. I could read and compute less, easily finding time to devote to writing, but I am not motivated to do so, because I enjoy reading and computing. Writing is exhausting mental work. It is much easier to take information in than to formulate meaningful sentences, which will hold the attention of another person. Often I think of writing, but am not inspired with a topic upon which to expound. I can come up with a 140-character thought to post to Twitter and Facebook, but going beyond that is more difficult.

I have a plethora of books on the art and craft of writing, and could probably find inspiration in some of those. I know I should write if I ever intend to produce work of value. I am so afraid of writing something of inferior quality that I avoid writing much at all.

I love writing and find it very satisfying. I feel a need to put my words into a permanent form, but I rarely make the sacrifice required to accomplish that goal. Perhaps there is an element of laziness in this shirking of effort.

I am sincerely considering reading less so that I may devote more time to writing. That would be a huge sacrifice to me because reading is one of my greatest joys.

If you write, what do you sacrifice to put out your words ?

Always,
Jo Ann

 

A Bit of My History with Mental Illness

I have lived with diagnosed mental illness since 1981. When I look back, I know it began before then. The bullying I was subjected to throughout my school years, the consistent yelling and fighting that went on between my parents and the sexual abuse I suffered at the hands of my father negatively affected me and does to this day. I have forgiven those that hurt me, but the damage lingers ingrained in my personality, my emotions, and my mind.

I married at sixteen, hoping that would end some abuse, but because my husband and I lived for a time in my parents’ home nothing really changed. We finally moved out and I was away from my father, so some trauma eased. There were serious problems in the marriage and it fell apart. The divorce was driving me insane and then I was given drugs that caused my first huge psychiatric breakdown in 1981. My mother and brother rescued me. I nearly died and without the prayers of thousands of people, I would never have made it. The doctors told my family that I would be a vegetable, but God had other plans.

I moved back into my parents’ home and the sexual abuse began again. My father was a master manipulator, who kept me in fear so I never revealed what was happening to me. He hid all his deviousness from my mother, so she was never aware of his monstrous acts. Threats kept me scared to say anything even when he was convicted of child molestation with other children. I also feared that the father I deeply loved would be taken out of my life forever and did not know how my mother and I would survive without my father’s financial support.

I was originally diagnosed with severe Paranoid Schizophrenia. I was on medication for a while, but because of the cost and the severe side effects, I did not remain on it long. I worked and lived at home where I was tormented for several years. I was in and out of mental wards and on and off medication.

When the opportunity to move in with a co-worker presented itself, I quickly accepted. That situation was not a good one and I moved back to my parents’ home after a short time. I then moved in with a boyfriend and that worked until he began mistreating me. I went back to my parents’ home, worked and suffered. Another boyfriend invited me to Chattanooga, Tennessee to live with him and marry.  That went well for a while. He was determined I keep a job so I went to High Point, North Carolina and sold Kirby vacuums door to door. The situation there was not ideal and my mother came to get me. I moved back to Chattanooga with my boyfriend. I was not on medication and became pregnant in 1987. My boyfriend wanted me to have an abortion, but I was afraid I might never get pregnant again, and did not believe in abortion, so I fought for my baby. My boyfriend and I married, but he warned me it was a two-year trial marriage. Alex was born on May 16, 1988, and I devoted my life to him, and trying to please my husband. Before the two years were over my husband demanded a divorce. He would allow me to continue to live with him, but we would no longer be married. Alex and I went back to my parents’ home and the abuse began again. I had another mental breakdown including hospitalization and went back on medication for a short time.

I recovered enough to get a decent management job, and met my third husband. We lived in my parents’ basement, but most of the abuse stopped. I was overworked in my job and very sleep deprived. Eventually it led to my having a mental breakdown, at this point my diagnosis was changed to Schizo-Affective Disorder. My boss unfairly fired me terminating my excellent health and disability benefits. I was not able to go back to work. My parents moved to Douglas County, where my brother, James, lived. They left us to rent their house in Mableton with our payments going toward purchasing the house. We lived happily for quite a while, but in 1996 my nephew, Jim, was killed in a car accident, and my father died of an aneurism shortly afterward. I had been living without medication and the stress caused me to have problems. Our marriage fell apart, and I was again hospitalized. While the divorce was going on, I applied for Social Security Disability at the recommendation of my doctors. I finally began receiving benefits in 1997 after moving back with my Mom. I stayed on my medication and lived quite well. Alex and I were quite happy.

I continued to communicate with my third ex-husband and we recovered our relationship in 1999. Alex and I moved into his home. I became pregnant with twins and stopped taking my medication. The twins had Twin to Twin Transfusion Syndrome. Melissa Faith died and the neo-natal doctors urged me to terminate Katherine Rose because there were extremely high risk factors for her and myself. In one of the hardest decisions I ever made, I chose to terminate the pregnancy. My mental state declined and I disobeyed a rule my ex had made. He kicked us out of the house and put all our belongings on the carport, subsequently those things were stolen. I over dosed on medication trying to kill myself because I felt there was no hope for me. I wound up in the hospital and was put back on medication. Alex and I tried living with my brother, Melvin, but that was a total disaster and I asked my Mom if we could come back to her home. She agreed.

Shortly after we moved in with her, Mom was stung by twenty-seven yellow jackets and she had a mini-stroke. Her health began to decline, she was diagnosed with Parkinson’s disease, and she was restricted from driving because of the mini-strokes. I became her primary caregiver. My brother, James, was diagnosed with lung cancer. My brother, Melvin, learned my father had molested my nieces, my friend, and I. He and his wife, Carol, cut off all contact with my Mom and brother, James. They claim it is my Mom’s fault my father abused us. They declare she is just as guilty as he was. When I finally asked Mom if she knew my father had abused us, she said no. I believe my Mom because she has never been a liar. Carol continued to communicate with me by email, but I finally decided if they could no longer visit my Mom and James that I did not need to be in contact with them.

Thanks to my Mom and brother, James, I was able to raise Alex to become a fine young man. He is a United States Marine serving our country. James died on March 15, 2009 after a prolonged illness in which Mom and I provided a great deal of his care. I promised James I would take care of Mom and I intend to do it to the best of my ability.

I am very fortunate that I am controlled on medication right now. Even with it, I have some impairment, but it is not obvious in most interactions. I realize it, and am aware that I am having difficulties, but others may not.

Right now, there are things that are stressing me terribly. Without my Social Security Disability Income, Medicare, and medically needy Medicaid I could not survive. I am afraid of cuts to these programs. My Mom is seriously ill and experiencing a worsening of symptoms and effects right now, and as her full-time caregiver I am under a lot of stress. I had my last significant breakdown in April 2005 and for most with my condition the best case without one is five years, many are hospitalized at least every two years. I am therefore “living on borrowed time” so to speak. Stress and lack of sleep can push me over the edge, and I have had a bit of both going on recently.

I actually do some writing at times. There is a bit of my work posted in my notes on Facebook and more on my blog at www.hopefuljo.wordpress.com . I often think there is a book in me, but my self-esteem is not strong enough to support that kind of sustained effort. I have actually gotten to the point where most of my writing is done in 140 characters or less on Twitter and simultaneously posted to Facebook via TweetDeck. I also have some editing and publishing experience because I desktop published a magazine some years back.

I have a very strong faith in Jesus Christ and I credit that belief with getting me through much of the distress I have encountered in life. I, however, have difficulty with doing some things associated with faith. I am very uncomfortable in crowds, so I do not regularly attend church. I have a huge amount of paranoia and tend to persecute myself so reading scripture can cause me problems. I can become convinced I am going to Hell and have horrible nightmares. I have to be careful. I do study the Bible, but I have to do it in small bits and make sure I do not linger too long in the very negative passages.

I hope this gives some insight. I really do not know how to express these things very well. Until recently, I have been terribly afraid to discuss any of this. Some people have no empathy and cannot relate or understand and I do not like to stir up hate.

Always,
Jo Ann J. A. Jordan


Some Random Things You May Not Know About Me…

1.   I love my steak medium rare.
2.   I could spend unlimited amounts of money on books and eBooks.
3.   I treat my puppy dog, Hope, as if she is my second child.
4.   I am a very good editor and once published a magazine.
5.   I love electronic gadgets: computers, iPods, BlackBerry cellphones, Nikon digital cameras, digital video cameras, and my Kindle.
6.   I collect so many things my room is overly cluttered.
7.   I love my son, Alex, so much that it is often overwhelming.
8.   I don’t believe in buying songs from iTunes, but always buy my music on CD.
9.   I am a perfectionist, not a good thing at all, as it keeps me from trying things at times.
10.  I am very loyal, trusting, and love my friends and family very deeply.
11.   I have a slow temper, but once I am angry I can hold a grudge for a long time.
12.  I sometimes have a very dirty mouth, usually when angry.
13.  I hate to cook, but am quite good at it.
14.  My favorite color is red.
15.  The Rolling Stones are my favorite Rock stars and I have seen them in concert twice.
16.  I watch very little television and find it very irritating.
17.  I am a Christian, but have moderate attitudes.
18.  I have never flown on an airplane.
19.  I am very good at entertaining myself and almost never become bored.
20. I take care of my 81 year old mother who has Parkinson’s Disease and other maladies.
21.  I believe all people have unlimited creativity and special talents.
22. I love art and can draw and paint a bit.
23. I almost always wear Nikes.
24. I have had the same email address over ten years.
25. Some people say I am a talented writer, but I have not written creatively in a while.